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Lord Alton of Liverpool to ask Her Majesty's Government, further to the Written Answer from Lord Kamall on 2 November 2021 (HL3362), how prospective patients are best enabled to give informed consent if the Human Fertilisation and Embryology Authority needs to suppress the release of pertinent data on safety and efficacy of methods to avoid mitochondrial disease through assisted conception; how they consider patient confidentiality may be compromised by the release of anonymised numerical data; and which other approved medical treatments or areas of biomedical research, if any, require similar secrecy regarding safety and efficacy data.  HL3662

Question HL3662: tabled on 3 November 2021 and due for answer by 17 November 2021

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Question text

To ask Her Majesty's Government further to the Written Answer from {member id="4909" field="DisplayAs"}{/member} on 2 November 2021 (HL3362), how prospective patients are best enabled to give informed consent if the Human Fertilisation and Embryology Authority needs to suppress the release of pertinent data on safety and efficacy of methods to avoid mitochondrial disease through assisted conception; how they consider patient confidentiality may be compromised by the release of anonymised numerical data; and which other approved medical treatments or areas of biomedical research, if any, require similar secrecy regarding safety and efficacy data.
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