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Lord Sharkey to ask Her Majesty's Government, further to the remarks by Baroness Blackwood of North Oxford on 1 May 2019 (HL Deb, col 1020) that they intend to "ensure that the review takes into account the benefits offered by new treatments for severe life-threatening and rare diseases", what plans they have to provide assurances that NICE will not end the use of rarity as a decision modifier in its highly specialised technology appraisal process.  HL9379

Question HL9379: tabled on 20 October 2020 and due for answer by 3 November 2020

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Question text

Lord Sharkey to ask Her Majesty's Government, further to the remarks by Baroness Blackwood of North Oxford on 1 May 2019 (HL Deb, col 1020) that they intend to "ensure that the review takes into account the benefits offered by new treatments for severe life-threatening and rare diseases", what plans they have to provide assurances that NICE will not end the use of rarity as a decision modifier in its highly specialised technology appraisal process.  HL9379
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